I was diagnosed with Pulmonary Sarcoidosis in 2005. It is hard but I have been dealing with it but it still stresses me out totally. I am 34 & have been on oxygen for 2 years now.

Over the past couple of weeks, my sides started hurting really bad, I actually felt like I was having a heartattack Thursday morning. I went to see my doctor and asked if he would xray my lungs since it had been awhile. (I was really dreading the outcome!)! He informed me that the Sarcoidosis has spreaded to the outer edges of my lungs. It was bad enough that it covered the parts of my lungs around my espagus, which causes the trouble breathing & pain. The pain gets so bad that I have to vomit. (sorry). I take plenty of medicine but it doesn't really help when I am having a bad flare up.

So how am I supposed to accept that this is getting worse. There is no cure for this disease. I also have Pulmonary Hypertention, which I was told only a lung transplant would fix. Can anyone give me some advice???

I have COPD and I am on 02 also. My disease is to the point that lung volume surgery would not help. My lungs are too full of emhysema damage all over and not just in one place. My only hope is a single or double lung transplant.

I have experienced the same feelings you are having. You can pray and talk to God. That helps. I found that, for the most part, support made me depressed. They some times have good information, but the depression was not worth it.