☆ Does any one have Antiphospholipid syndrome (or antiphospholipid antibody syndrome)? ☆

Does any one have Antiphospholipid syndrome (or antiphospholipid antibody syndrome)?
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dose any one know of a group here in texas or near irving, texas or where i can talk to people with it. i found out i have it last year. i am looking for people to talk to about it.

Answer:

I can't believe it! I'm moving to Irving in only 9 weeks! Yes, I have APS. And yes, there IS a support group out there for you. Unfortunately, it's only on the internet at www.apsfa.org You'll find tons of info there. Here is also a list of docs who specialize / have experience with APS in our area:

Hematology

Charles Deur, MD

801 W. Road to Six Flags Ste 105; Arlington, TX 76012

Phone: (817) 274-6532

Sherron R. Helms, MD

8220 Walnut Lane; Dallas, TX 75231

Phone: (214) 346-3500

Internal Medicine

Ricardo Alonso Murillo, MD

Dallas, TX 75246

Phone: (214) 827-6200

Below is a little about me and my experiences with APS; feel free to read or not to read. Good luck to you, and I hope to see you in the forums sometime! You can also feel free to email me.

I have had it for going on three years now, after having suffered a massive PE in 2004 at the age of 22, and suffered a second only three months later.

I am on Coumadin for life at a high dose.

You should also consider asking to be put on Coumadin if you're not on it already.

Some things really quick about Coumadin:

You need to wear a Medic Alert bracelet stating that you are on this drug and why. See www.medicalert.org They have 24 hour on call assistance if you're every injured.